Welcome to A Gravel Road Journey!

NOT SO LONG AGO, Dad RE-named his art studio, "A Gravel Road Studio", and so this seemed an appropiate title for his blog.

Why 'Gravel Road'? As Dad explains, "Gravel roads take us off life's busy highway and force us to slow down. When we slow down we have time - time to notice the things around us; the things that matter the most; life and breath, the flowers and the trees. Gravel roads allow us to taste the dust of our travel and give us time to breathe."

Since his studio is a place of quiet reflection and contemplation, we wanted to create a space for family and friends to do the same as we journey together down this new and unknown path. We also wish to keep family and friends updated on his diagnoses and treatment, so please check in often for updates and new information.

Wednesday, June 3, 2009

A Few More Articles

Hi Everyone,

Thank you all so much for your wonderful comments! It is a great comfort to know that so many people are surrounding us in prayer at this time. Just wanted to share with you a few more links for articles that have been written about Dad in the last few days. The first was written by Morley Walker, who wrote a few articles over the past few months for the Winnipeg Free Press. The second was written by Jamie Howison, priest at St. Benedict's table, and one of the people officiating at the memorial service on Saturday.

http://www.winnipegfreepress.com/breakingnews/Visual-artist--46577382.html

http://stbenedictstable.ca/ - scroll about half way down the page, and the article is entitled, "Praying the Offices with a Dying Friend"

Mom also sent me one of the pictures that will be in the paper today with the obituary, so I updated that in the previous post.

Monday, June 1, 2009

The Obituary

For those who aren't in Winnipeg and won't see this in the paper, we wanted to share this with you here. It will be run in the Winnipeg Free Press on Wednesday, June 3rd. The picture in the paper will be a different one, but I only have the Word document copy, so it won't let me post that here (it's the wrong format).



It is with great sadness that the family announces the passing of Gerald Folkerts at Riverview Health Center on May 30th, 2009, at the age of 51.

Left to mourn his passing are his wife, Arlis, and their children, Jared (Dana, grandchildren, Xavier and Shaela), Janis, Jesse, and Brendan. Also left to remember him are his mother, Anna Folkerts, and parents-in-law, Arend and Rosella Wassink. He will be missed by family members Harry (MaryAnne), John (Wendy), Ken (Alice), Rudy (Shirley), Liz (Melvin), Hans, Janice (Roger), Hilaine (Roger), Cornie (Deb), Gloria (Ken), as well as many nieces, nephews, and friends.

Gerald was predeceased by his father, Andy Folkerts, nephew, David Folkerts, and infant nephews, Travis VanWhye, Matthew Alons, and Seth Folkerts.

Gerald was a loving husband, and a wonderful father and grandfather. His great love besides his family was his art. Gerald was an artist who worked at home out of his third-floor "gravel road" studio. He was devoted to painting art that invited viewers to reflect upon, and sometimes wrestle with, allusive, suggestion-rich and deeply relevant images. Gerald was dedicated to living out his Christian beliefs and loved the less fortunate. He will be deeply missed by his family and friends. There are too many experiences that we still crave, but we're blessed by the memories we have.

Thank you to the staff at Riverview, CancerCare, and the Palliative Community Team. In lieu of flowers, a trust fund has been set up for Gerald's children. Donations may be dropped off at Crosstown Civic Credit Union (1200 Henderson Highway, Winnipeg) or Covenant Christian Reformed Church (653 Knowles Ave., Winnipeg). Donations may be mailed to: P.O. Box #28080, 1795 Henderson Hwy, Winnipeg, MB, R2G 4E9.

A memorial service will be held at Covenant Christian Reformed Church, 653 Knowles Ave., on June 6th, 2009 at 11:00 a.m.

Saturday, May 30, 2009

One Final Day

Family and Friends,

It is with a heavy heart that I write to you this evening. Dad developed pneumonia starting Friday afternoon, and suffered a seizure this morning. His lungs started filling up with fluid this afternoon, so Mom called and we all came to the hospital - got there around 4:45 pm. By that point, Dad was pretty much in a constant state of seizuring. About 5:30 pm, the nurses gave him some medication to help relax him, along with some more morphine to help with any pain and make him more comfortable. He was, and at 6:50 pm, surrounded by family, Dad very peacefully took his last breaths of life. We were able to stay with him in the room for a while afterwards, to say our final goodbyes and decide when the funeral will be held.

Because we have so many family members who live out of town, we have decided to leave it until next Saturday. It will be at 11 am on June 6th at Covenant Christian Reformed Church. We welcome all of you to attend and share with us in a celebration of Dad's life.

Wednesday, May 27, 2009

Another Day

Went to visit Dad again this evening after a day of our 'normal' routines. It was nice to have a bit of a break from sitting around the hospital all day, but at the same time, we feel badly for not being able to be there the entire time. Mom was at the hospital for most of the day, though, and when she couldn't be there, a few friends stopped by to sit with Dad.

A few updates as far as medications go. They have decided to stop the antibiotics since they know now that it's not a chest infection. Not much point in keeping Dad on them when they aren't doing anything. They have also started him on a saline solution through the sub-cue lines rather than through IV. With an IV there is concern that the fluid will just go to Dad's lungs. But with the sub-cue lines, he stays hydrated without the concern of the excess fluids. He was sleeping pretty deeply the whole time we were there this evening, but Mom said he was awake/aware earlier in the day. His speech is becoming quite slurred, though, and very hard to understand. It's another one of the signs that the cancer is continuing to take over.

So, as always, we ask for your continued thoughts and prayers. It means so much to read the comments left and know that we are not journeying alone.

Tuesday, May 26, 2009

The Journey Continues

Just got home from another long day at Riverview. Dad was in a lot of pain this morning and was asking for all of the family to come to the hospital. After sitting there for the majority of the day, everyone but Mom went home for a bit of rest and so the kids (Xavier and Shaela) could nap. We're planning on going back this evening, and we're not quite sure what will happen, but I think Dad was feeling this morning like the end was definitely near. The nurses said sometimes patient's know, but sometimes they are wrong and it still takes a few days or weeks before they pass away. It's the not knowing exactly when that makes it so hard. You want to stay there and be with Dad when it happens, but at the same time, you need to break. Especially for Xavier and Shaela - it's hard on them being couped up at the hospital all day.

Anyway...just wanted to let everyone know what was going on, and to ask for more prayers. Please pray for peace and strength for the family, and for peace about everything for Dad. I'll keep everyone updated if there are any more changes in his condition.

Sunday, May 24, 2009

Roller Coaster Ride

Well, the birthday pictures should be working now - the hospital computer wouldn't let me download them from my email to post on here....

Anyway....just wanted to post an update to let everyone know how the weekend has been unfolding. Jared and I, along with the rest of the family, were at the hospital till about 9:30 last night. A few friends dropped in to say hi, but for the most part, the day was spent talking in Dad's room, watching TV in the family room down the hall and taking Xavier and Shaela outside to the little park that is at Riverview. Dad slept the whole time, and while it was a very deep sleep, his breathing was very laboured, and he was very clammy most of the day. The nurses started him on a low dose of morphine, since he is now feeling some pain in his chest, and they are continuing the antibiotics in case of any infections (like pneumonia).

Today we were all back at the hospital again and Dad was doing much better today than he was yesterday. He was awake a little bit this morning and we were actually able to talk to him for a short while. He slept for the majority of the day, but he would occasionally open an eye for a moment, and if we talked to him, he would respond quietly under his breath with a groan or a small smile. So that was encouraging to see.

He is, however, still in a state of decline. He hasn't eaten at all for the last two days, and there are a few other signs that his body is starting to shut down. But, that doesn't necessarily mean this is the end. I think the entire family is no longer feeling like we're journeying down a gravel road - we've now boarded a roller coaster and are on a constant wave of ups and downs. It was like this way back in December when they told us they didn't think Dad would make it until Christmas. We all thought for sure the doctors and nurses were right, because he kept getting worse and worse. And now, here it is, almost 6 months later, and Dad is still with us! We're so grateful for the extra time with him, but it's emotionally exhausting. It becomes really hard to balance living the rest of our lives and wanting to spend every last minute we have with Dad. I think for the most part, we are all finding that balance and handling things as best as we can. But we continually need to be lifted up in prayer. This is definitely not an easy journey, and we couldn't survive it without the support of friends and family. Thank you to all of you who have followed along with us through this blog, praying for us, bringing meals. It's been such a huge blessing, and we hope that you will continue to be there with us no matter what the future holds.

Saturday, May 23, 2009

Please Pray!

Hello again,

As you can assume from the title, I do not have good news to share this afternoon. Dad took a turn for the worst this morning and he is currently surrounded by friends and family in his room at Riverview. It started last night while Mom and Janis were here visiting. Dad's breathing was really rapid and not like it normally is. By this morning, the doctors and nurses thought maybe he was developing a chest infection. However, after more blood tests and a thorough check by the doctor, it was determined that Dad has a blood clot, most likely in his lungs. This is a very serious condition, for which there really is no treatment. He's been put on blood thinners so that things can still flow around the clot, but aside from that, there isn't much they can do. Thankfully, Dad doesn't seem to be in any pain right now and seems to be sleeping pretty comfortably.

However, the family is in definite need of prayer right now. As we've said many times, we have no idea how much longer we have with Dad, and that's still the case today. Only God knows the answer and the only thing we can do is surround ourselves with family and friends and rest in the assurance that God loves us and has a plan for all of us in this. That can be a lot easier said than done, though. Please pray for peace, comfort, and strength for all of us right now. We'll keep you updated with any changes as often as we can......

Birthday Celebrations

Well, I've been meaning to post all week about Dad's birthday celebration, and unfortunately, time always seems to slip by me faster than I want it to.....however, it is better late than never, right???

On Wednesday, May 13th, Jared, myself, the kids, Mom, and Janis all gathered at Riverview for Dad's 51st birthday celebration. We had Chinese food ordered in and I made a chocolate cake for Dad. We had a few friends stop in and join us for dessert a little later in the evening, and what a great night it was. Mom got a great card for Dad, and while he didn't really appreciate the humor in the card at the time, it was so great to be able to laugh and joke with family, despite the rough year we've had.

Dad isn't exactly looking his best these days, but we still love him just the same, and what a blessing it was to enjoy one more birthday celebration with him. God has been very gracious in giving us a few more months with him, and so despite the hospital setting, it was a very joyous occasion. Here are the cream of the crop of pictures we took that evening. Hope you'll enjoy them! (if they aren't working, I'll try again at home later today...we're at the hospital right now!)

Thursday, May 7, 2009

Discouraging News

We knew this day would come, and we just didn't want it to happen. But the time has finally arrived when the doctors can no longer increase Dad's steroids anymore. Mom spoke with the social worker this morning and they basically told her that once the effects of the dose he's on now start to wear off, they will slowly start decreasing the amount he is given. I know I haven't mentioned on here the exact dosage that Dad has been receiving. But right now he is on 45 mg two times a day. When it was in pill form, that translated into 14 pills at a time! They have since put the sub-cue lines back in, so it's in liquid form and they don't need to try to wake him up to give him his meds anymore.

Anyway, for those of you that are familiar with steroid use and cancer - the typical dose that a person receives is 2-5 mg twice a day. So, when I have mentioned that Dad is on a very high dose - now you know HOW high! He was at 30 for quite a while, but for the last two weeks, he's been on the 45 mg. The doctors and nurses had a planning meeting this morning, and none of them have ever seen or known of any patient on such a high dosage. Which is why they have decided they can't go any higher. They aren't sure of what kind of side effects it might create, or what other problems that it might add to Dad's condition if they increase the levels anymore. So, what we can expect to happen is that as they decrease the dex., the side effects of the cancer will start becoming more apparent.

Needless to say, we are hoping that Dad will be able to remain in Riverview throughout the course of these next few weeks/months. There hasn't been any talk of him being moved elsewhere in the last week or two, so we are hoping that is good news and it means he will be able to stay there. We (and the doctors and nurses) have no idea how much longer Dad has, but they have made it sound like it might be quick once the dexamethasone starts being decreased. So, what is quick? Only God knows the answer to that one. It could be a week, it could be four. It could be three months. We don't know. But we do know that it is going to be increasingly hard on our family from here on out. We are still hoping and praying for a miracle. God is a very powerful God and we know that He can still give us one. But if not, please pray for strength for the family. For peace about the situation. For comfort. We appreciate your prayers more than words can express!

On behalf of all of us,
Dana

Sunday, May 3, 2009

New Developments

I am always surprised to come back on here and see that it's been a few weeks since I updated! I guess when life is so busy, it's hard to keep track of the time!

Anyway...there have been a few new developments since I last posted on here. Dad had a fall about a week ago in the washroom at Riverview. He wasn't able to get his hands out in time and smoked his right eye on the floor, causing it to split open. He didn't need stitches at all, just the little bandaid things that hold the skin back together. It turned a lovely shade of purple and as pleasant as it looked, Dad asked us not to post pictures on here of it, so unfortunately, you'll have to use your imaginations! It's looking much better this weekend, though.

Dad was also having some trouble going to the washroom for a few days so earlier this week he got a catheter put in. He says it is mildly uncomfortable, but otherwise doesn't seem to notice it. He has still been sleeping quite a bit, but the doctor increased his steroids again and he has been a little more aware of what's going on around him for the last few days, which we are always thankful for.

We're not quite sure what the catheter means as far as Dad possibly coming home. There hasn't been any talk of that possibility lately, and in all honesty, we would prefer that he be able to stay at Riverview. It's a lot less stressful for Mom, and we know that he is getting great care where he is. It's a beautiful facility as well, and Dad seems to enjoy it there. So we'll see what happens...

On a slightly unrelated note, I wanted to share this news with everyone on here, since I know a lot of people that read this are not on Facebook....I am hosting a "Help Whip Cancer" Fundraiser on May 6th at our home (635 Maryland Street, Wpg.) from 7-10 pm. It's through Pampered Chef, so if you purchase any of our products, then a portion of the proceeds will go the the Canadian Cancer Society. However, I am also doing a silent auction on the night of, and 100% of the proceeds from the auction will go the CCS. You can also make a donation directly to the organization (I'll be collecting the donations on their behalf and sending them all in at once). If anyone is interested in purchasing silent auction tickets or placing an order, but can't make it on Wednesday, please email or call me. I'd love to give you more information!

Thanks everyone! Hope you have a great weekend!
Dana
(204) 774-3522
jaredana15@yahoo.ca
www.pamperedchef.biz/danafolkerts

Tuesday, April 21, 2009

Praise and Possibilities

Once again I can't believe it's been a few weeks since I updated on here. Time seems to fly by so quickly these days! I do have good news to report though, and that is that Dad's blood sugar levels have finally been regulated! The nurses are down to checking his sugar levels twice a day, instead of four times, and he usually doesn't need any insulin anymore. Just the diabetic pills.

Which leads me to the 'possibilities' part of the title.....Dad has been declining the past few weeks that he's been at Riverview. He's been sleeping more and is showing more and more confusion. However, Mom met with the doctor and social worker this morning to talk about possible placements for Dad. Even with the decline, he is not a point where he needs to see a doctor everyday (especially since they have been able to regulate his blood sugars), so they are hesitant to keep him at Riverview. They obviously want those beds for those that need them most, which is understandable. But bringing Dad home would mean a lot of extra work and added stress for Mom. So, they talked it over today and are discussing several different options. We're not sure what this means yet, and likely won't know for a few days. Mom said that Dad will be in Riverview at least another week, and her prayer is that he can end up staying there, instead of being moved elsewhere.

It pretty much goes without saying that Mom and the family need your prayer support in this matter. We're not quite sure what will happen in the next few weeks, and we are very thankful that Dad is feeling better in relation to his blood sugar. However, we have a few big decisions ahead of us, so please pray that we would make the right one and that wherever Dad ends up, that he will still be receiving the best care that is possible for him.

Thank you all so much! Take care,
Dana

Wednesday, April 8, 2009

A Couple More Weeks

Well, Dad was not able to come home at all yesterday like the doctor had originally hoped. We were at Mom and Dad's for supper last night and Mom filled us in on the latest news. Dad's blood sugar levels have been going down, but they are still not quite regulated enough for him to not need the insulin shots. Until they get him down to just the diabetic pills, he has to stay at Riverview, so it will most likely be at least a week, probably closer to two before he can be released.

Thankfully his cold is gone, but the last few days he has been sleeping again a bit more. They are doing bloodwork again (I think today) to try and determine the cause, and the results of that might mean changing some of the doses of his medications again. We'll know more about that in a few days.

In the meantime, please continue to keep the family in your prayers. We appreciate it so very much!

Thursday, April 2, 2009

A Possible Homecoming

Talked to Mom on the phone this afternoon and she had good news for me to update! The antibiotics are working and Dad's cold seems to be going away, so the doctor was very hopeful that Dad might be able to come home soon. There is a bit of glucose in the antibiotics, so they didn't think he would be home until at least Monday. Even with the added meds, his blood sugar levels have been below 20 for the past three days.

So, once the antibiotics are finished, which will be on Monday, as long as Dad's blood sugar stays below 20, the doctor said that Dad might be able to come home on Tuesday. If his levels do stay down that low, then he won't be required to take insulin shots at all. He'll still be on diabetic pills, and I'm sure Mom will still have to closely monitor his blood sugar levels, but at least he won't need to get shots every day.

So please keep on praying! Hopefully I'll be able to update in a few days with news that Dad has returned home!

Tuesday, March 31, 2009

Still Not Regulated...

Well, unfortunately, the two to three days that Dad was supposed to be in the hospital for has now turned into six. The doctors and nurses are having some trouble regulating his blood sugar and still don't have it at a low enough level to let him come home. It's definitely lower than when he was admitted last Wednesday night, but still not at an acceptable level for Mom to manage it at home. So far, there's no word from the doctor on how long it might be before they do get it regulated.

Dad has also developed a cold in the last couple days and was started on some antibiotics for it yesterday. We've all been taking turns visiting with him and he seems pretty comfortable so far. Mom got a phone put into his room yesterday, so we can now call in, although Dad isn't able to call out at all - probably a good thing, or he'd be racking up a pretty large phone bill, I'm sure! Jared stopped in this morning for a few minutes before heading to his practicum and as he was leaving, the physical therapist was coming in to get Dad up and walking around for a while.

Hopefully we will have more answers soon as to when Dad might be coming home. And hopefully the antibiotics kick this cold of his quickly so that it doesn't turn into anything more serious....

Until next time,
Dana

Wednesday, March 25, 2009

Off to the Hospital...

Well, Dad is off to the hospital tonight for a few days. They got the results of his bloodwork back earlier today and his blood sugar levels were really elevated. The normal range is around 5, and his level from yesterday when they did the blood work was 25. They expect that his levels would be slightly higher because of the dexamethazone that he is on, but tonight when the nurse came to double-check the level, it was so high that it wasn't registering on the monitor. They gave him some insulin and were able to get it down to around 30, but after speaking with the doctor on call, they were told that he needs to come in to the hospital for a few days so that they can flush his system and get the levels regulated. Mom mentioned that he'll need at least 10 litres of fluid to completely flush everything out.

Thankfully, he will not have to go through emergency at all. Mom got a call around 9 pm and a bed had opened up at Riverview, which is a palliative care facility, so once they got it cleaned up and ready to go, they were to call the non-emergency ambulance and they will come to the house and pick Dad up. We just spoke to Mom a few minutes ago (about 11:30 pm) and the ambulance still wasn't there yet. But, if any of you have been following the weather here in Winnipeg, you'll know that we've had snow all day here! Yup, that's right - it looks like December out there! Gotta love "Winter-peg" right?!?! Needless to say, the roads are icy and it's miserable outside, so it may be a while before the ambulance gets there. Hopefully it won't take too long, but you never know with the weather we've been having!

So the plan right now is for Dad to stay in for a few days, with the expectation that he'll be home once his blood sugar is regulated. Once his levels even out, then he should have a bit more energy again and won't be sleeping so much. He's also been really thirsty the last few days, and Mom said he was drinking about 4 litres of milk a day. He is now not allowed to have any dairy or fruit - those are the two main triggers for upping the blood sugar. Hopefully once his levels even out, he'll be able to have at least small amounts of both - I guess we'll find out in a few days!

Needless to say, Dad needs some definite prayer right now! He will be on diabetic pills and insulin the next few days, and will most likely continue to need insulin when he gets home to ensure that his blood sugar levels continue to stay at a more normal level. I'll continue to update as we get news from the doctors....

Tuesday, March 24, 2009

A Series of Ups and Downs

Well, the time has come when I no longer have only good news to report. Dad, sadly, has not been doing very well the last week or so. The nurses had increased some of his medication last week, and it seemed to help for a few days, but this last week there hasn't been much improvement at all. He's been very shaky (basically having minor seizures or tremors), is sleeping a lot more, and his balance and co-ordination are quickly dwindling. He's not at the point yet where he can't get up out of bed, although he did have a minor fall earlier today and Mom wasn't able to help him up on her own. It's at the point now where she has been contemplating getting 24/7 care from the palliative team, and finally put a call in this evening to get that put into place. I'm not sure how soon that will happen, but I'm assuming it will be this week sometime. Right now they are still coming from 8 am until 4:30 pm and then again from 11 pm until 7 am. But the time has come when Mom just can't do it on her own anymore; she needs the help round the clock.

Fortunately, there are still a few options with his medication. He had blood work done today, and depending on the results of that, the doctors may change some of his medications, or switch up the doses again. Time will only tell if it will be effective or not.

As for how Dad is taking the recent struggle, I think so far, he is still in denial. He talks of getting better and playing soccer again. And he gets very angry when someone suggests that he isn't doing well. He's been increasingly difficult to get along with, which the nurses had said would happen in December, and thankfully, we didn't experience until now. It's the hardest on Mom, since he takes most of his frustrations out on her. I'm sure sometimes it's hard to remember that it's the tumor talking, and not Dad.

So, please continue to pray for us. For strength, for courage, for patience. I'd like to thank each and every one of you that has been following this blog - your prayers and support mean so much to us! Thank you for allowing us to share our burdens with you, and for following along in this journey with us.

Thursday, March 5, 2009

A Much Over-due Update

Feels like it's been forever since I updated on here, and I promise we're not trying to keep people in the dark - there just hasn't been much to tell lately, which has been a very good thing! Dad has been doing amazingly well the last month or so, and we are so very fortunate and thankful for this time that we are having with him. That being said, there are a few major things that have happened recently, so it is once again time to share the latest news.....

A few weeks ago, Dad developed a crackle in one of his lungs, which had the nurses a little bit concerned. If you remember from December, crackling in the lungs is a sign that pneumonia could be starting to settle in. Since Dad is up and more mobile now than he was in December we were hoping it wouldn't turn into anything serious, and thankfully it didn't.

Mom also had an overnight getaway with a girl friend last weekend. They travelled to Grand Forks for a night and did some shopping and a bit of sight-seeing. It was a nice relief for her, and I think both her and Dad were grateful for the opportunity for some much-needed alone time.

Something else that has been going on with the family in the last few weeks is that we have started meeting with one of the palliative social workers that is on staff at the hospital. We have now had two sessions, and it has been a great way to stay connected as a family and to really open up about how each of us is doing with the situation. It's been especially great for Jared and I, since we don't live at home and don't see all the day-to-day things that are going on. It's been a great insight for us into the struggle that this whole ordeal has been on Mom and Dad. To say that it's been a bit difficult the last few months is an understatement. Especially now that Dad is feeling a little better and is more alert, he wants to be more independent. But it's not recommended that he do all the things he'd like to do and he gets frustrated that he isn't able to. And since Mom is the one there with him all the time, it's hard for him to not take out his frustrations on her.

His memory is still not what it used to be as well, so he and Mom will have conversations about things and Dad won't remember them - and then gets mad at a later date because he feels like decisions have been made without his consent or input - when in reality, they have been and he just doesn't remember. I think they have decided to get a notebook to start writing down important conversations and decisions that have been made, so that Dad has a record of those conversations - a recommendation from a friend of ours whose family did the same thing with her Grandma when she had Alheimer's. In some ways, it is very much like Dad has a case of that! It's become apparent from these counselling sessions how much of a strain this has placed on Mom and Dad's relationship, but hopefully having a safe space to talk about their struggles each week will help them to overcome a lot of the stress that it has placed on their relationship. One thing is very clear, though, and that is how great of a job Mom is doing taking care of Dad. Between administering his medication, knowing when he needs which ones and how much of each to give, making sure that Dad is getting up and moving each day, balancing all the paperwork that is involved with Dad's care, planning all of the 'end of life' things that need to be in place for someone who is in palliative care - and still managing to get Brendan off to school each day, take care of bills that need to be paid, etc. etc. I don't know how she manages it all! Let's just say that her overnight vacation was very well deserved!

In other family news, Jesse left for BC a couple weeks ago to stay with Dad's brother John and his wife, Wendy for a few months. He's interested in starting his own landscaping business in the future, and Uncle John owns his own nursery, so Jesse is working for Uncle John while he's out there, getting more experience in the field. From what we've heard, he is enjoying his time out there so far.

And, last but not least, is the latest in Dad's condition. He's been feeling a bit tired this past week and he had a pretty bad fall last Thursday. The nurses were not happy with him, and stressed the importance of using his walker or wheelchair at all times (which he didn't do, and that's why he fell). Because of the steroids that he's on, his bones are very weak and can break quite easily, but thankfully, he did not injure himself seriously this time. We hope there won't be a next time and that he actually listens to the nurses' advice. I think so far he's been doing pretty good about using the walker and he is now wearing his transfer belt at all times as well. He has still been able to get out and about to a few outings, though, depsite not feeling quite as well this past week. Brendan had a volleyball tournament on Saturday and Dad made it out to one of his games. And last night, Jared and I had the privilege of going along with Mom and Dad to the Steve Bell concert. It was very good!

I think that's it for now. As always, we continue to ask for your prayers for Dad and the rest of the family. Thank you all for continuing to follow along, even though there hasn't been a lot to update on recently - just remember that no news is good news, so if you don't hear from me/us for a while, it means things are going well!

Friday, February 20, 2009

Latest News

Sorry for the delay in updating. Dad was supposed to have a meeting with the Palliative doctor last Friday, but we didn't hear anything all week until Jared and I were at Mom and Dad's on Wednesday night for supper. The meeting ended up not happening. I think they just talked to the doctor over the phone. Or to the palliative nurse, Mom didn't really specify. Either way, they have decided to switch a couple of Dad's medications back to pill form for a while, but that was the only change after his CT scan.

Dad had a great personal accomplishment on Wednesday, though. He's been asking to go up to his art studio for a few weeks now and he finally had the energy to make it up there with the physical therapist on Wednesday! He was very proud of himself, and we were very happy for him that he got to see his studio again. It's funny how your priorities change once you become sick. Who would have thought five months ago that walking up two flights of stairs would be such a big deal? It really puts things into perspective and makes you realize that so many of the little trivial things that we worry about each day are really not all that important in the long run.

Friday, February 6, 2009

CT Scan Results

Well, Mom and Dad were at Health Sciences today getting the results of Dad's CT scan. The news wasn't great, but it was what we have all been expecting to hear. The swelling has been reduced, but the tumor is still there and hasn't shrunk at all. There is a chance it has grown further down into Dad's brain, but they can't tell that at all from the CT scan, so we have no way of knowing for sure. The palliative care doctor, Dr. Garcia, will be making a trip to the house this next Friday (the 13th) to re-evaluate Dad's condition and possibly mix up the concoction of medications that Dad is on. Mom mentioned that they might put Dad back on the pill form of the steroids, instead of the liquid ports that he has now in order to give his arms and legs a bit of a break from that.

Since I haven't posted at all since the art show, I wanted to take a minute to mention that as well. It was a very good weekend - very busy - but it was so good to see so many people out supporting Dad and the family. Thursday night at the opening was PACKED! It was wall to wall with people! We heard around 400 in total - I'm sure we broke the fire code regulations for the building! But it was good. Dad even stood up and gave a short speech. He returned again on Sunday for the closing ceremony, and again said a few words. There was a constant stream of people passing through all weekend, and there were a lot of books and prints that sold, as well as a few pieces of artwork. We haven't heard final numbers of books or prints sold yet, but I know there was a lot! So thank you to everyone that came out. It was so great to see so many friends, family, and acquaintances. And a huge thank you to Steve Bell, Jamie Howison, and all the others that organized the event. It was something really special for Dad to look forward to, and we were all very grateful that he got to be there to see everyone's hard work come together.

And finally, a word about some rumors.....we've heard a few things through the grapevine since Dad got sick that we've shaken our heads over and wondered how people heard such things. The latest tidbit of information that floated our way was that Dad's tumor is gone. While we would love for that to happen, and we are still praying for that miracle, it is not the case. So, I am officially setting the record straight, and I ask that before you repeat anything that you hear about Dad, please check the blog first to confirm if it is true. We created this blog in order to keep people informed - so if you hear something that hasn't been posted on here, please check with an immediate family member before spreading the news around. We appreciate your co-operation, and we are doing our best to keep you up to date on Dad's condition.

On behalf of all of us,
Dana

Thursday, January 29, 2009

Another Article and a CT Scan

For those of you that missed it, Morley Walker wrote another article about Dad in the Winnipeg Free Press yesterday. I haven't checked yet to see if it's been posted on the website, but I'll update if gets added....

And for the big news, Dad will be receiving another CT scan to check on the swelling around the tumor. It's been scheduled for this next Monday, February 2nd at 9 pm. Then Dad goes back in for bloodwork and to find out the results on the 6th of February. From what Mom told us last night, I don't think they are looking much at the tumor, just at the swelling around it. I guess we'll find out for sure on the 6th when we get the results!

Also wanted to post a reminder about the art exhibit, "Unfinished Business". It opens tonight at the Outworks Gallery @ 7 pm (address and more details @ www.folkerts.ca). The whole family, including Dad, will be there and we're looking forward to a night out with family and friends.

Tuesday, January 27, 2009

Antibiotics and Outings

Well, I will share the bad news first. Dad had a bit of rattling in his chest a few days ago and the nurses checked him over and determined he was getting a cold. Normally, not such a big deal. But Dad's immune system is still in a very weak state. The doctors put him on antibiotics, and so far, he is doing well. He has to take them for five days, but the effects are supposed to last about another five days after he's done taking them. Hopefully they do the trick and it doesn't develop into pneumonia.

Now for the good news.....where to start is the question?!?!? Dad has been feeling really good the last week or so, despite having a cold. He's been up and about in the house on a regular basis, and he's been more coherent in the last week than he has been for quite a while. It's so nice to see glimpses of the 'old' Dad. Since he's been feeling so well, Dad has been spending a lot of time on the phone calling friends and family. I know he's been thoroughly enjoying the converstations he's been having, and I'm sure he has many more people that he'd like to talk to yet.

His other exciting news is that he actually got out of the house on Saturday. Mom and Dad went out for supper to the Inn at the Forks with a few friends, and Dad told us on Sunday that it was absolutely amazing. I think he was really glad to finally be outside again after being cooped up in the house for so long. I know he is also getting very excited for the art show this weekend, and is looking forward to seeing friends and family.

And finally, as always, we continue to ask for your prayers. Even though the art show is only a few short days away, a lot can change in that short amount of time. Please pray that Dad would continue to feel well enough to come to the show, and that the antiobiotics would clear up his cold before the weekend is here.

Saturday, January 17, 2009

A Visit from the Palliative Doctor

Well, Dad had a visit last week from the Palliative care doctor, Dr. Garcia. They decided to increase his dexamethazone (steroid) medication in order to improve Dad's cognitive functions. So far it is working, and Mom started to see improvements beginning Tuesday of this week. Dad has been more alert and awake the last few days than he has been for quite a while, and also has an increased appetite. It's been so nice to see him up and out of bed a little more often, and able to joke and carry on much longer conversations than he was able to a few weeks ago.

Another new piece of equipment has arrived in the last few weeks as well. Mom and Dad now have a Hoyer Power lift for the days that Dad doesn't have the strength to get up out of bed. This has made it much easier for Mom to get him up when he isn't able to help, although I don't think they have had to use it much since it arrived.

The doctors and nurses are continuing to moniter his condition and his medication levels. And we continue to pray that we would see healing in Dad's brain. We are also getting excited for Dad's art show at the end of January, and are very hopeful that Dad will be able to make it out for the show.

Sunday, January 4, 2009

In the Papers

Mom thought it would be a good idea to mention this here, in case anyone may have missed it. Dad has been featured in two different papers in the past few weeks. The first article was printed in the Winnipeg Free Press before Christmas. And we just found out today that there is an article in the latest edition of Christian Week as well.

For anyone who missed the Free Press article, it can be found on the website for Dad's art show: www.folkerts.ca. Click on 'Article' and it will display the whole thing. Since the Christian Week article just came out today it's not on the website yet. I'll update on here if it does get added.

That's it for today. We saw Dad today after church and he's doing about the same as he has been the last few weeks. He's not necessarily any better, but he's also not really any worse, which is always good news. We continue to hope and pray for a few more months with him, but we just have to keep taking it one day at a time, trusting that God knows best how much longer he'll be here with us.